Monday, December 7, 2015

Let's Play Some Catch Up

We are still here!  You may be wondering as I said I would post a LONG time ago...but I guess time has got to me once again.  So here is some catch up:

  • Cardio Update - Sloan has had two cardio appointments since my last post and both went well. She still has some fluid in her chest (which is common at this time) so she is still on her diuretic.  We cut it down to once a day versus the twice a day she was getting.  We hope that she'll be off it entirely when we go back to see Dr Grifka in January.  During her last appointment, we also had an echo.  All looked great and things were functioning as they should be.  So all in all Sloan is on the mend just as the text book says she should be.  Since I haven't given her stats in awhile, here is where Sloan was at:
    • Height: 3'0.5" 
    • Weight: 32lb 6.4oz 
    • Oxygen Level: 92%.  For those of us with no heart complications, our oxygen levels should be 100%.  Sloan has never had 100% and prior to her fontan, she would be in the low 80s.  For children that have a non fenestrated fontan procedure (which is what Sloan had) their oxygen levels should be in the low 90s...so Sloan is right on point
  • Fall Fun - The weather was beautiful this fall so we have been able to enjoy a lot of fall activities - jumping in leaf piles, lots of Halloween activities, and celebrating big brothers 5th birthday.  This year our house had a Dorothy (from Wizard of Oz) and a Darth Vader (from Star Wars).  We've had a couple of colds through the house that have hung on for a few weeks, but luckily it's been nothing more than a bad cough and runny nose.
Pumpkin Bowling

Our Dorothy - Wizard of Oz is one of
Sloan's favorite movies
Darth, Dorothy,  my dad and the costume creator my mom
Drake's 5th birthday party - Star Wars,of course!

  • Christmas Preparations - We made our annual trip to Chicago to meet with Santa.  Both kids were so excited and hopped right up on his lap to tell them all they wanted.  It was a fun trip!
Santa Trip
We head back to Grand Rapids to see Dr Grifka in January.  Sloan also starts ballet & tap classes in January.  Let's just say she is BEYOND excited.




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